Home Sunday mid morning!

Just realized that I have not updated the blog as we got Jonah onto the Pediatric Floor on Friday.

Once again, Jonah showed us how truly resilient he is! He took his pretty slow the rest of Friday, but by Saturday morning he was up in his wheelchair drumming his heart out.

This is the only x-ray I have so far of Jonah‘s new hardware. He has such a tender heart. He got very emotional when he found out that Dr. Rocchi had used some additional donor bone to stabilize everything. He kept asking if he could please visit with the family who lost a loved one and tell them how much he appreciated the gift. 

He kept everyone in stitches as he shared all of his quirky words of wisdom with anyone who would listen.

Jonah truly lives to drum! That is what pushes him to withstand the discomfort and to just keep going. 

We had very much enjoyed having Grandma Raine helping us through this journey. It will be hard to say goodbye tomorrow evening.

 I’ve had a terrible cough for the last month or so.  I finally got sick of it today and went to urgent care and found out I have bronchitis.  Hopefully I’ll be feeling much better after a few days taking antibiotics. 

If any one local wanted to drop off a meal this week or next I would gladly accept!!!

All settled in room 14

 

This sweet boy of mine is all settled in.  He’s a pretty happy camper now that he’s in his own room with unlimited access to goldfish, pancakes with Nutella, ice water, and drumming games on his tablet.

The PACU was quite an adventure today. Jonah quite nearly proposed to Dr. Rocchi as he came out of the anesthesia. He was was a real smooth talker!

Thank you for your support and prayers!

Progressing

 I just got another update from the OR. They are progressing nicely. They have added some screws and are preparing to place the plate. 

1 hour into surgery

 The nurse called about ten minutes ago and said that everything is going well so far. They started the actual procedure just after 9:00 and we can expect another phone call around noon.

Surgery #2 has begun.

 Jonah was wheeled back for surgery at about 8:20. 

These x-rays were taken yesterday at his 2 week post op appointment. It’s no wonder that his pain has stagnated. Poor guy! Jonah is such an inspiration! After a very brief cry upon hearing the news that they had to redo the surgery, he has been calm and confident. He has been asking everyone he comes in contact with to pray for him. Love this kiddo soo much!

Keep checking back as I will as updates as I get news. 

Not Again!!!

 At Jonah’s 2 week post OP appointment yesterday it was discovered that one of the screws in his pelvis has broke loose and has fractured the bone it was attached to. It requires surgery to repair. The surgery is going to be today I plan to add updates here as often as we get more news.